Favorite Sharable Resources
- “What is Lipedema?” brochure from the Lipedema Foundation. Available in English, Spanish, and German.
- Patient Self-Advocacy Guide from the Lipedema Foundation
- Lipedema Care & Treatment Options from the Lipedema Foundation.
- Standard of Care for Lipedema in the United States is a great starting point for creating care plans.
Lipedema Organizations
Fat Disorders Resource Society
- Website: https://www.fatdisorders.org/
- Youtube: https://www.youtube.com/@FatDisordersResourceSociety/featured
- Annual Conference held where clinicians, physicians, surgeons, lipedema warriors, and caregivers come together for community and to learn about the latest research.
- 2025 Conference: March 21-23 in Atlanta, Georgia. Recording will likely be made available to non-attendees in late 2025.
- 2026 Conference: Not yet announced.
Lipedema Foundation
- Website: https://www.lipedema.org/
- Can order free brochures on lipedema to give to healthcare providers. There can be a wait so LF has also made available a PDF version available to download. If you would like printed brochures, The Supine Studio is also able to mail you some.
- Lots of resources, including information on clinical trials and lipedema specific research.
American Lipedema Association
- Website: https://americanlipedemaassociation.org/
- Nonprofit dedicated to helping lipedema patients advocate and spread awareness. You can track various advocacy actions happening. You can also get involved!
Lighthouse Lymphedema Network
- Website: https://lighthouselymphedema.org/home/
- Focuses primarily on lymphedema, but has a directory of Certified Lymphedema Therapists (CLT). CLTs are a great way to find someone working with lipedema.
International Lipoedema Association
- Website: https://theila.net/
- Focuses on information for healthcare providers, but has resources for patients. This takes more of an international, specially European approach to lipedema care.
Facebook Groups
- Liposuction Insurance Coverage (Sponsored by American Lipedema Association)
- SC Lipedema Group
- Upstate Monarchs–this group is for Upstate SC
- Advanced Lipedema Treatment Patient Guidance and Insurance
- Cover Lipedema: Insurance Coverage for Lipedema
- Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders
- Lipedema Sisters USA
- Friends of Lipedema Sisters
- Lipedema Research Library-LRL
Lipedema Surgeons
This is not to suggest that these surgeons are good, bad, ect. These are just surgeons that I know are working with lipedema specifically. Please do your own extensive research before choosing a surgeon.
- Arizona: Dr. Karen Herbst of Total Lipedema Care in Beverly Hills, CA and Tucson, AZ
- California: Dr. David Amron of the Roxbury Institute in Beverly Hills, CA
- California: Dr. Shawn Moshrefi of the Roxbury Institute in Beverly Hills, CA
- California: Dr. Aria Vazirnia of the Roxbury Institute in Beverly Hills, CA
- California: Dr. Jamie S. Schwartz of Total Lipedema Care in Beverly Hills, CA
- California: Dr. Michael Schwartz of Pasadena Plastic Surgery in Pasadena, CA
- California: Dr. Justin West of Total Lipedema Care in Beverly Hills, CA
- California: Dr. John Larson of Larson Aesthetics in Newport Beach, CA
- Delaware: Dr. Nadiv Shapira of First State Med Spa in Wilmington, DE
- Florida: Dr. Jay W Granzow of Granzow Lymphedema & Lipedema Center in Jacksonville, FL.
- Not currently accepting new lipedema patients when I called in November 2024.
- Florida: Dr. Thomas Su of Artlipo Lipedema Surgery in Tampa, FL
- Georgia: Dr. Thomas Hagopian of Hagopian Plastic Surgery in Atlanta, GA
- Georgia: Dr. Marcia Byrd of the Lipedema Surgery Center in Atlanta, GA
- Illinois: Karol Gutowski of Karol A Gutowski in Glenview, IL
- Kentucky: Dr. Bernard Salameh of Salameh Plastic Surgery Center in Bowling Green, KY.
- Missisour: Dr. Thomas Wright of Lipedema Surgical Solutions in O-Fallon, MO
- New Jersey: Dr. Boris Volshteyn of Atlantic Surgical Associates in West Long Branch, NJ
- North Carolina: Dr. Jeffrey Ditesheim of Ditesheim Cosmetic Surgery in Charlotte, NC
- Washington: Dr. Daniel Hagerty of Premier Body and Laser in Spokane, WA